近日，渐冻症（ALS）患者、前京东副总裁蔡磊发布了一段在完全失声前录制的视频，引发广泛关注。在这段珍贵的视频中，蔡磊用尚存的声音讲述了自己与病魔抗争的心路历程，并表达了对科研、公益以及家人的深切牵挂。他坦言，随着病情恶化，语言能力逐渐丧失，这段视频可能是他最后一次用自己的声音向公众发声。蔡磊自2019年确诊以来，始终积极投身于推动中国罕见病研究和药物研发，不仅成立慈善基金，还联合多方力量搭建患者数据平台，致力于为包括ALS在内的罕见病群体争取更多社会关注与医疗资源。此次视频的发布，既是对自身战斗历程的一次深情回望，也是一次无声却有力的呼吁：希望更多人关注渐冻症，支持相关科研进展。他的坚韧与奉献精神感动了无数网友，被誉为‘用生命点燃希望’的斗士。
Recently, Cai Lei, a former JD.com vice president and ALS (amyotrophic lateral sclerosis) patient, released a video recorded just before he completely lost his ability to speak, drawing widespread attention. In this poignant footage, Cai shared his emotional journey battling the disease while still able to use his own voice, expressing deep concerns for scientific research, public welfare, and his family. He acknowledged that as his condition worsened, his speech gradually faded—and this might be the last time he communicates with the public using his natural voice. Since his diagnosis in 2019, Cai has actively championed rare disease research and drug development in China. He established a charitable foundation and collaborated with various stakeholders to build a patient data platform, striving to secure greater societal awareness and medical resources for those affected by ALS and other rare conditions. The release of this video serves both as a heartfelt reflection on his personal fight and a powerful, silent appeal for increased public support for ALS research. His resilience and dedication have deeply moved countless people online, earning him recognition as a warrior who ‘ignites hope with his life.’
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