近日，一段‘渐冻症患者哭着感谢蔡磊’的视频在网络上引发广泛关注。视频中，一位ALS（肌萎缩侧索硬化症，俗称‘渐冻症’）患者情绪激动地向蔡磊表达感激之情，称其为病友们点燃了希望之光。蔡磊曾是京东集团副总裁，2019年被确诊为渐冻症后，并未向命运低头，而是毅然投身于推动该病科研与药物研发的公益事业。他发起成立‘渐愈互助之家’，搭建患者数据平台，推动中国首个渐冻症专项基金设立，并积极促成国内外科研合作。他的行动不仅加速了相关研究进程，也让无数患者感受到被看见、被支持的力量。许多患者表示，在绝望中看到蔡磊仍在奋力奔跑，便也有了继续坚持下去的勇气。这段真挚的感谢，既是对蔡磊个人奉献的认可，也折射出罕见病群体对社会关注与医疗进步的深切期盼。
Recently, a video titled ‘An ALS patient tearfully thanking Cai Lei’ has drawn widespread attention online. In the clip, a patient with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease or ‘渐冻症’ in Chinese, emotionally expresses deep gratitude to Cai Lei, calling him a beacon of hope for fellow patients. Cai Lei, formerly a vice president at JD.com, was diagnosed with ALS in 2019. Instead of succumbing to despair, he dedicated himself to advancing research and drug development for the disease. He founded the ‘Jianyu Mutual Aid Home,’ established a patient data platform, helped launch China’s first ALS-focused charitable fund, and actively facilitated international scientific collaborations. His relentless efforts have not only accelerated research but also made countless patients feel seen and supported. Many say that witnessing Cai Lei’s unwavering fight gives them the strength to keep going amid their own struggles. This heartfelt expression of thanks is not only a tribute to Cai Lei’s personal dedication but also reflects the profound hopes of the rare disease community for greater societal awareness and medical breakthroughs.
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