蔡磊曾是京东集团副总裁，2019年被确诊患有肌萎缩侧索硬化症（ALS），俗称“渐冻症”。面对这一目前尚无有效治愈手段的罕见病，他没有选择被动接受命运，而是毅然投身于攻克该疾病的研究事业。自确诊以来，蔡磊已个人投入超过1亿元人民币，用于支持渐冻症的基础科研、药物研发、患者数据库建设以及推动相关政策完善。他发起成立了“渐冻人公益基金”，并联合国内外顶尖科研机构，加速新药筛选与临床试验进程。此外，他还积极推动社会对渐冻症群体的关注，呼吁更多资源向罕见病领域倾斜。蔡磊表示：“即使我无法等到药物问世的那一天，也要为后来者铺路。”他的行动不仅体现了企业家的社会责任感，更展现了患者在绝境中不屈的抗争精神，激励了无数人关注和支持罕见病研究。
Cai Lei, formerly a vice president at JD.com, was diagnosed with amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig’s disease, in 2019. Faced with this currently incurable rare disease, he refused to passively accept his fate and instead committed himself wholeheartedly to advancing research toward a cure. Since his diagnosis, Cai has personally invested over RMB 100 million (approximately USD 14 million) to support fundamental ALS research, drug development, patient data registry building, and policy advocacy. He founded the ALS Charity Fund and collaborated with leading research institutions both in China and abroad to accelerate drug screening and clinical trials. Moreover, he has actively raised public awareness about ALS and advocated for greater allocation of resources to rare disease research. “Even if I don’t live to see an effective treatment,” Cai stated, “I want to pave the way for those who come after me.” His efforts reflect not only the social responsibility of an entrepreneur but also the indomitable spirit of a patient fighting against overwhelming odds—inspiring countless others to support the cause of rare disease research.
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